NET by disease stage
Extensive disease information can become overwhelming. Therefore, the information on NETs included in the myNETjourney platform has been grouped by disease stage. Please access the disease stage-specific information in the list below.
Learn more about the normal function of neuroendocrine cells and how they can acquire a malignant behavior and form neuroendocrine tumors.
NETs are very heterogeneous and can produce a wide variety of symptoms. Find out which are the most commonly occurring symptoms in NETs of the digestive tract and lungs.
NETs are classified according to grade, differentiation, and stage. Understand what these concepts mean and what they can tell you about your tumor.
Take care of yourself and your emotions. Here you will find some tips that may help you.
As a patient with a NET, you may need specialized care. Read more about multidisciplinary teams and which specialists may be involved in the management of your tumor.
Do not be afraid to ask questions to your doctors. We are providing some examples that can serve as a basis to guide discussions with your care team.
Find information about the most common tests that may be performed for diagnosing and monitoring your NET.
Some NETs may not require treatment. Your care team may decide that the best option is to keep your tumor closely monitored. Learn more about this option here.
Read about the wide range of treatment options that are currently available so you can be prepared to discuss them with your care team.
Your care team will decide on the best options for you based on the recommendations from published clinical practice guidelines. Take a look at the guidelines available for NETs.
Your NET will be monitored for signs of progression with periodic follow-up tests. Your care team may adjust your treatment according to the results of these tests.
If your NET has progressed, your care team may propose alternative treatment options.
Learn more about the treatment options available for NETs that have metastasized. Your care team can discuss the best options for you.
If appropriate, your doctor may offer the possibility to enter a clinical trial. Read more and understand how clinical trials work.