NET by disease stage
There is a lot of information on NET and it can be overwhelming. The myNETjourney platform is organized by disease stage to make it easier to find the content you are most interested in.
Learn more about the normal function of neuroendocrine cells and how they can become abnormal or cancerous and form neuroendocrine tumors.
NETs are frequently referred to as being heterogeneous, meaning that they can be very different and also produce a wide variety of symptoms. Find out what symptoms are the most common for NETs that develop in the digestive tract or lungs.
NETs are classified by grade, differentiation, stage and site of origin (where they develop in the body). Understand what these classifications mean and what information they provide about the tumor.
Being diagnosed with NET or caring for someone who has been diagnosed with NET is a lot to process and emotional support is crucial. Here are some ways to find the support you need.
As a patient with NET, you will need specialized care from a variety of doctors in different areas of medicine. This group of specialists is commonly referred to as a multidisciplinary team. Read more about multidisciplinary teams and which specialists are involved in NET care.
Do not be afraid to ask your doctor questions. Here you will find some examples which can serve as a basis to help guide conversations with your care team.
Find information about the most common tests that may be performed to diagnose and monitor NETs.
Some NETs may not require treatment. Your care team may decide that the best option is to closely monitor the tumor. Learn more about this option here.
Read about the wide range of treatment options that are currently available so you can be prepared to discuss them with your care team.
Your care team will decide on the best options for you based on the recommendations from published clinical practice guidelines. Take a look at the guidelines available for NETs.
Your NET will be monitored for signs of progression with periodic follow-up tests. Your care team may adjust your treatment according to the results of these tests.
If your NET has progressed, your care team may propose alternative treatment options.
Learn more about the treatment options for NETs that have spread to other areas (metastasized). Your care team will discuss the best options for you.
If appropriate, your doctor may ask if you are interested in participating in a clinical trial. Read more to understand how clinical trials work.