Patient advocacy groups (PAGs)
Explore neuroendocrine tumor support and advocacy groups
Discover trusted NET patient advocacy groups offering resources, emotional support, and guidance for every step of your NET journey.
Navigating neuroendocrine cancer can feel overwhelming, but there is help available
A neuroendocrine tumor diagnosis often brings uncertainty, questions, and emotional challenges. That is why connecting with the right neuroendocrine cancer support groups can make a meaningful difference in your journey. Whether you have received a neuroendocrine tumor (NET) diagnosis yourself or are supporting a loved one with NET, you are not alone.
This page introduces you to trusted patient advocacy groups dedicated to supporting the NET community and offering NET patient resources.
Get connected to NET patient advocacy and support groups
Within this page, you will:
Understand the purpose of patient advocacy groups (PAGs), their services, and the support they offer you
Find direct links to trusted NET advocacy groups and support organizations
Trusted support from patient advocacy groups
This page is here to support you with information and links regarding trusted patient advocacy groups (PAGs) dedicated to guiding and empowering the NET community.
Who this is for
This page is dedicated to
People with newly diagnosed NET
People undergoing treatment
Family members and friends looking for support
Anyone seeking emotional or practical NET support
Those looking for trusted patient advocacy resources
Understanding patient advocacy groups: vital support for the NET community
Patient advocacy groups (PAGs) are organizations set up to represent and support patients and their families living with a specific condition. They do this in serval ways, by promoting the needs and priorities of patients, representing their perspectives and interests, and serving as trustworthy experts on the disease. PAGs also provide a forum to connect with other people facing similar challenges, and contribute significantly to raising awareness about the disease.
PAGs usually provide a wide range of support for NET patients - from resources for coping with a neuroendocrine tumor diagnosis and guidance on how to find a neuroendocrine tumor specialist, to helping with financial assistance for NET patients, information on neuroendocrine tumor patient rights, or knowledge on NET clinical trial access. They can also help with finding emotional support after NET diagnosis and navigating work during neuroendocrine tumor treatment. Whether you are a patient or a loved one seeking information, these groups provide essential neuroendocrine tumor support every step of the way.
Patient advocacy groups may vary greatly in structure and size, with some being small, volunteer-run organizations, and others large-scale professional charitable entities, highlighting the diversity within patient organizations.
Explore NET patient advocacy
Connect with patient advocacy groups that understand your challenges and provide the resources you need.
